Interesting or infuriating, you pick…

Personally, I’m going to go with infuriating. You be the judge for yourself.

I posted for help yesterday and I’m really glad that I did.  Networking and gaining knowledge on anything that might help Sean is just one of the many reasons I started this blog. Maybe someone will read something and tell us about a new therapy, medication, service, etc. Yesterday, a friend put me into touch with a friend of his who has fought to get her child help and has been an advocate for other children in Michigan.  This is just the connection I needed! Thank you Andrew!!

She told me where to call and what to say.  She told me that they would deny that he could get help and give me the run around.  Yep. That happened. I’m not giving up though.  I’m going to push it further at this level and then if I don’t get anywhere I’m going to be vocal publicly.

The lady I spoke with today was very nice, unlike some of the other CMH/DHS people that I’ve spoken to in the past.  She did seem compassionate about our situation.  However, I don’t think she was completely informed and I’m not going to just take today’s answer from her as my final answer. Community Mental Health says right on their site that they help children and adults with developmental disabilities.  Well if Sean doesn’t have a developmental disability then I don’t know who does!?

She did tell me something that honestly should infuriate every single tax payer. (bear with me for the backstory)

I told her about how I applied for Medicaid as part of the waiver program.  I had to apply for Medicaid, be denied, and then apply for the children’s waiver. When I did that the state mistakenly didn’t use mine or Kelly’s income on our application, even though it was listed.  Therefore, pretty much instantly (like a matter of minutes) our whole family qualified for Medicaid.  We were a family of six with ZERO income according to the state.  I, of course, didn’t realize it was because of this error.  They had asked me a whole bunch of questions on the phone about Sean and I figured we qualified based on his disability. WRONG!

I told the person that did the intake interview that day last August that I was a teacher more than once.  She knew I had an income, but it still happened.  I even told her that I didn’t think I would qualify because of our income.  She assured me that I qualified that I just needed to continue to the next step.  She had me choose doctors on the plan for all of us, etc.  I went to the pharmacy to pick up Sean’s medicine and had NO COPAY to pay.  I couldn’t believe it.  It happened so quickly. It was relatively easy.  We were getting help! I should have and could have just left it, but I knew that it was an error.  It had to be, so I called to check on it.  The person who answered the phone listened and then asked me if I had a job.  I told her that I did and how much I made.  She literally laughed at me and said that it was definitely a mistake. 😦 So then it took my almost 6 weeks to undo Medicaid in error.  It was a nightmare.  I knew it was too good to be true and it was unfortunately.

The lady today told me that I should have kept the Medicaid.  I told her that I didn’t really qualify and didn’t feel right about taking advantage of an error like that.  She reiterated to me again that I should have kept Medicaid in error.  ARE YOU KIDDING ME? People do you see the problem here?

Let’s recap what some of the government offices in our state have told my families and others too…

Families with special needs children in Michigan have been advised to get divorced on paper to qualify for help. 

Families with special needs children in Michigan are told to quit their jobs and get government assistance and Medicaid to help receive services. 

Families with special needs children in Michigan are told to take Medicaid and other services in error to receive help. 

Doesn’t this make you REALLY wonder what else is going on with these programs?  

I find this infuriating.  You might find it interesting.  You might not even care because it doesn’t affect you, but you never know if one day it will . 😦 

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