Today he turns ten. It’s hard to believe that my baby is a decade old today! If I think about all of the things a neurotypical (please don’t say normal to me, it’s pretty offensive to be honest) child at ten is able to do, I could get pretty depressed. So, for the most part, I don’t go there. At the beginning of the school year, I can’t help but think of what grade “he should be in” especially because he would be at my school with me. The year of kindergarten round up that didn’t happen was probably the hardest. I’ve truly never been in denial with Sean. In fact, I’ve been the complete opposite. I knew in my gut something was going on, even when pretty much nobody else saw it or believed me. I don’t fault them, at least most of them, as I have the mama bear intuition with him. I wrote “at least most of them” because honestly, there were a few medical professionals and therapists that I don’t think helped matters much, but hopefully they have grown in their knowledge over the last ten years and are helping others. My biggest regret with Sean, minus the H1N1 flu vaccine in 2009 is that I didn’t know about the biomedical route years ago. I didn’t realize he had PANDAS and that if I treated the PANDAS years ago it could have made a significant difference in his life. However, like my sister Kathy always tells me…you can only make the best decisions with what you know about at the time. She’s right, but I still wish…
Here are the things to celebrate this year. Sean’s receptive language continues to grow. That boy knows a lot more of what is being said than you think he does. He opened his presents this year and initiated it. This is huge to me! I’ve been wanting him to do that for years! Right now, infection wise he’s doing very well. Hopefully, now that our saltwater pool is done for the year, we can keep him in a good place with his PANDAS by other means.
I’ve included a few pictures of Sean and his brother on the day of his party. He was pretty hyper all day, but really enjoyed his party which was awesome to see. I’ve also included a picture of his first day of “school” even though he goes to the therapy clinic instead of a school. Autumn sent me this picture and it made my whole day. He stood still and even gave a smile his best effort. I love this boy!
If you are a praying person, please pray for Sean and the year ahead to be his best yet! Thank you! ❤