Let’s get real…

Sean had an AMAZING day on Friday both at home and at therapy!  In fact, he got the best report I’ve seen in quite awhile. I could tell a difference before I took him there on Friday morning.  He was listening so well.  He was very attentive and making good eye contact. He let me stop and “count his freckles” multiple times and  he laughed and laughed each time. He took off his shoes shortly before we were leaving the house.  I told him once to get his shoes and put them on or he couldn’t leave for school.  He went and found them and put them both on in just a matter of minutes.  This is not typical.  Usually you have to ask him multiple times and even help him as he’ll only do one or will refuse completely, etc. He had started the CBD oil on Wednesday night.  I really think it was starting to help and it probably still is helping.  However, he stopped taking abilify completely Friday night as we’ve been weaning him for the 3-4 weeks.

I am certainly praying this is a very short phase as honestly he’s very difficult unless he is sleeping.  This weekend there has been a whole lotta smashing and throwing food, taking a drink and then spitting it out, climbing on tables and counters, crying and then laughing, and head banging, especially when he doesn’t get his way. All of these behaviors have been elevated.

These pictures are two different walls in our house that took a beating from Sean this weekend.

I’ve repaired a few holes throughout that house that he made from when we first moved in and before he was treated for PANDAS.  Let’s just say that I am not very good at it. I’m thinking Kelly or Uncle Mike might need to help these walls out.

I thought I’d have great news to share all weekend because of how Friday was for him.  I think I was just a little naive to not realize that when he stopped the last 1/2 pill of abilify completely it would be tough. It’s okay.  I’ve been wanting him off this medicine for quite awhile.  Right now he’s not taking antibiotics, steroids, anti-psych meds, or anti-virals. I’m grateful he’s in a place that we could pull all those things back and infection wise he’s doing pretty well.  This is just a big little bump in the road.

Like my Mom always told us…this too shall pass! Hopefully that is sooner than later! I really don’t want this blog to be doom and gloom. However, I want it to be real and that means the good, the bad, the ugly and the amazing too! 🙂

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