Like any good family, the people in my family work together, especially when it comes to Sean. I honestly don’t know what I would do if I was still on this journey alone. As they say, it takes a village and much of our “village” lives in our house.
I’m going to paste a recent Facebook post I shared. It gives a little insight into what I’m talking about with our beloved pit crew.
So needless to say, Sean has had a rough day. He fell asleep for a little bit at therapy. Came home and didn’t want to eat or drink like he normally does. He asked to go in the pool, which I let him for about 15 minutes. He then started getting irritable. We came inside, changed and went for a car ride because he asked for one.
While we were driving he started throwing up in the back seat. I pulled into a parking lot and cleaned him up the best I could with napkins from my glovebox. I called Kelly and told him what happened and where we were at.
When we pulled up in the driveway, we were met by Kelly, Emma and Liam waiting for us. They had our designated family barf bowl, towels and the mini carpet cleaner ready to help. They were standing in the rain like a pit crew at the Indy 500 waiting for us. I think Sean just had his after therapy pill without enough food in his stomach. Fortunately, we didn’t have too much of a mess and the pit crew wasn’t necessary. However, I still appreciated the effort. 😊
I’m not going to lie. I’ve been feeling frustrated, weak and tired. But when I turned onto our street and saw them, I was reminded again about how awesome my family really is and how blessed I am.
We work together as a team. Everybody helps with Sean. Not everyone has this blessing.
Please pray for Sean to start feeling much better and pray for a very good night of sleep! We haven’t had an issue with seizures in a few years, but I’m a little nervous about the possibility so please pray for that too. Thank you!💙